Data-Sharing Politics and the Logics of Competition in Biobanking
Publikation: Bidrag til bog/antologi/rapport › Bidrag til bog/antologi › Forskning › fagfællebedømt
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Data-Sharing Politics and the Logics of Competition in Biobanking. / Tupasela, Aaro Mikael.
Bioeconomies: Life, Technology, and Capital in the 21st Century. red. / Vincenzo Pavone; Joanna Goven. 1. udg. Palgrave Macmillan, 2017. s. 187-206.Publikation: Bidrag til bog/antologi/rapport › Bidrag til bog/antologi › Forskning › fagfællebedømt
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TY - CHAP
T1 - Data-Sharing Politics and the Logics of Competition in Biobanking
AU - Tupasela, Aaro Mikael
PY - 2017
Y1 - 2017
N2 - This chapter explores the challenges associated with the competition logics of large prospective cohort (LPC) biobanks within the European context by identifying the challenges associated with the sharing of samples and data. LPC biobanking involves large collections of human tissue samples from specific populations (usually national). The collections are from, usually, healthy donors who are then tracked over decades to see what diseases they develop over the course of their lifespan. LPC biobanks, therefore, also collect large amounts of health and lifestyle information that can be attributed to the tissue samples collected from the donors. The chapter evaluates the emerging tension between policies and practices in LPC biobanking with reference to the sharing of samples, and re-considers the applicability of social scientific theories that have sought to explain the emerging bio-economy.
AB - This chapter explores the challenges associated with the competition logics of large prospective cohort (LPC) biobanks within the European context by identifying the challenges associated with the sharing of samples and data. LPC biobanking involves large collections of human tissue samples from specific populations (usually national). The collections are from, usually, healthy donors who are then tracked over decades to see what diseases they develop over the course of their lifespan. LPC biobanks, therefore, also collect large amounts of health and lifestyle information that can be attributed to the tissue samples collected from the donors. The chapter evaluates the emerging tension between policies and practices in LPC biobanking with reference to the sharing of samples, and re-considers the applicability of social scientific theories that have sought to explain the emerging bio-economy.
KW - Faculty of Health and Medical Sciences
KW - Biobanking
KW - bioeconomy
KW - data-sharing
KW - Open Access
KW - Cohort
KW - biocapital
KW - biovalue
KW - Genetics, Population
U2 - 10.1007/978-3-319-55651-2_8
DO - 10.1007/978-3-319-55651-2_8
M3 - Book chapter
SN - 978-3-319-55650-5
SP - 187
EP - 206
BT - Bioeconomies
A2 - Pavone, Vincenzo
A2 - Goven, Joanna
PB - Palgrave Macmillan
ER -
ID: 184606698